See the post below? The one about me? I care more about this than I do about that. Take a screenshot, friends! This won't happen often.
Have you met Bob's Big Brother? He's hot shit. If you've met him you already know this to be true. If you haven't, his mother blogs here. Go on, now. I guarantee you'll fall in love with Bob and with Bob's Big Brother within two-point-three posts or your money back.
The mother of Bob's Big Brother is how the world ends up so fortunate as to find itself in the presence of hot shit. The father of Bob's Big Brother lets people poke fun at him on-line and in person and still holds his wife's hand throughout an hour long book reading, but I suppose that's something else altogether. It seemed worth mentioning, though.
The mother of Bob's Big Brother and I bonded initially over our snotty attitudes and our irreverent senses of everything. We moved on to other things--friendship will do that to a couple of girls, no matter how entrenched they may be in frivolity and slushie machines--and at one point I mentioned the blinding headaches my husband gets, which are caused by lesions he has on his brain.
I remember the response I received from her very soon thereafter. "Does he have Cavernous Hemangiomas?" The words on the screen were breathless. The lack of anything but those words left me that way too. My husband's lesions are something other, but in those five words from his mother, Bob's Big Brother became my big brother too. I suspect that if you or someone in your life suffers daily from a thing or twelve, caused by another thing that can not be controlled, Bob's Big Brother just might become your big brother too.
There's a new cool in town, and I'd be forever grateful if my twelve readers (yes, I'm looking at you too, Googlebot) would click on just a few little links and find out whether you might not be closer to being the little brother or sister of Bob's Big Brother than you thought. House Representative Tom Udall of New Mexico has introduced Resolution 1193, which is expressing "the sense of the House of Representatives that there is a critical need to increase research, awareness, and education about cerebral cavernous malformations."
Yeah, dawg.
His mother can describe it far better than I. If you agree this issue needs more funding (1 out of 200 children are effected, angiomas are so often painful and cause myriad cognative, neurological, and behavioral problems, and yet so few of us have ever heard of them?), smart people have made it super easy for you to help. There's a letter template here. You can just fill in the blanks and send or fax it to your Representative. You can find out just who that is and how to contact him/her here (which is also fun information when you want to argue about transfats or leash laws or that thing you did when you... no, no, that's another blog... sorry, my bad). It'd also be awesome to contact members of the Subcommittee on Health, and hey! look! they're right here!
Or you could educate yourself about Cavernous Hemangioma if that's where you'd like to start. That ain't small. Knowledge is powerful, and you are the great and powerful Oz, as am I. Let's step out from behind the curtain and get this hot air balloon sailing. That's where the real shit happens.
Bob's Big Brother is just doing his thing. His mother is doing hers. Isn't that how the coolest people start their revolutions?
I've got my letter filled out and there isn't a single swear word in it. That's my revolution.
Wednesday, July 23, 2008
Bob's Big Brother is my big brother too.
Posted by
Mags
at
6:33 PM
Labels: absurd world, family, friends, mmm...
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1 WHAT?:
I lurves you, bless you with many slushies, and thank you.
Though, I probably should delete the swear words out of mine too.
*sigh*
Going now to edit.
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